Endometriosis Information

Endometriosis is a common disease that can affect any menstruating woman from the time of her first period to menopause. Sometimes, the disease can last after menopause. There is no cure for endometriosis and it can be hard for a health care provider to figure out if a woman has it. It can also be hard to figure out the best way to treat it if a woman has the disease. Endometriosis can affect a woman in many ways, such as her ability to work and have children, and her relationships with her partner, children, friends, and co-workers. Researchers are working to find out both causes and ways to manage this disease, so that women who have it can lead full lives.

What is endometriosis?

When a woman has endometriosis, the tissue that lines her uterus, called the endometrium, grows outside of the uterus. No one is sure why this happens. When this tissue grows outside of the uterus, it is mostly found in the pelvic cavity, usually in one or more of these places: on or under the ovaries, behind the uterus, on the tissues that hold the uterus in place, or on the bowels or bladder. In very rare cases, endometriosis areas can grow in the lungs or other parts of the body.

As the tissue grows, it can develop into growths, also called tumors or implants. These growths are usually benign (not cancerous) and rarely are associated with cancer. Growths can cause mild to severe pain, infertility (not being able to get pregnant), and heavy periods.

The endometriosis growths are affected by the monthly menstrual cycle. Each month, the lining of the uterus thickens to get ready for pregnancy. If a woman does not become pregnant, the lining of the uterus sheds and the woman bleeds. When a woman has endometriosis, the growths outside of the uterus also bleed during her period. But there is no way for the blood to leave her body, and inflammation and scar tissue can develop. Blockage or bleeding in the intestines and problems with bladder function may also occur.
What are the symptoms of endometriosis?

A common symptom of endometriosis is pain, mostly in the abdomen, lower back, and pelvic areas. The amount of pain a woman feels is not linked to how much endometriosis she has. Some women have no pain even though their disease affects large areas, or there is scarring. Some women, on the other hand, have severe pain even though they have only a few small areas of endometriosis.

General symptoms of endometriosis can include (but are not limited to):

• Extremely painful (or disabling) menstrual cramps; pain may get worse over time
• Chronic pelvic pain (includes lower back pain and pelvic pain)
• Pain during or after sex
• Intestinal pain
• Painful bowel movements or painful urination during menstrual periods
• Heavy menstrual periods
• Premenstrual spotting or bleeding between periods
• Infertility (not being able to get pregnant)

Also, women who have endometriosis may have gastrointestinal symptoms that are like those of a bowel disorder, as well as fatigue.

How would I know if I have endometriosis?

If you think you might have this disease, talk with your OB/GYN (obstetrician/gynecologist), since she or he is the only type of doctor trained to look for this condition. There are a number of tests a doctor can perform to try to find out if you have endometriosis. Sometimes, imaging tests are used to make a "picture" of the inside of the body, which allows a doctor to locate larger endometriosis areas. The two most common imaging tests are ultrasound, a machine that uses sound waves to make the picture, and magnetic resonance imaging (MRI), a machine that uses magnets and radio waves to make the picture. You can also take this free questionaire to find out more about endometriosis.

 

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